Three Out Of Four Childhood Cancer Survivors Missing Follow-up Appointments

Preliminary research involving a questionnaire of over 270 childhood cancer survivors will be a leading topic when the Clinical Oncology Society of Australia get together for their Annual Scientific Meeting.

The research examined survivors, whose treatment occurred on average 17 years ago, and why two in five of these patients are missing follow-up medical appointments which is putting them at risk of adverse health affects, including the return of the cancer.

Sydney Children's Hospital Kids Cancer Centre Associate Professor and study-leader Richard Cohn said that the biggest barriers stopping survivors getting the care they needed included a lack of appreciation of the risks (60%), the hidden costs of attending the clinic such as missing work or paying for childcare (40%) and a lack of awareness regarding the availability of clinics (30%).

Travel for rural and remote survivors was also identified by the researchers as a potential issue.

One in two childhood cancer survivors who didn’t attend follow-up clinics felt they didn’t have enough information on cancer and the late effects of treatment.

Professor Cohn said that while current cancer treatments don't result in most of the later-life effects, about two in three childhood cancer survivors who had undergone treatment in the past would experience a life threatening or life altering chronic disease later in life.

“With around 80 per cent of childhood cancer patients surviving their cancer and having potentially six or more decades of life ahead, improving the quality of life of survivors is a very important part of paediatric cancer management," Professor Cohn said.

“Complications might not appear for many years after treatment and can range from secondary cancers caused by radiation treatment through to fertility issues, heart problems, susceptibility to skin cancers and psychosocial issues. Many of the problems can be reduced or prevented if detected early.

“For instance, some women who have undergone chest radiation have similar levels of breast cancer risk as those who carry the BRCA gene and should undergo regular screening from young adulthood.”

COSA President, Associate Professor Sandro Porceddu, said that the research provided a clearer perspective on the opportunities and challenges in terms of catering for the increasing number of childhood cancer survivors.

“Many childhood cancer survivors are also not aware that the chemotherapy agents they may have received as part of their initial treatment can also increase the risk of developing a second cancer later in life.”

“One of the easiest barriers to break down is awareness and information,” Professor Porceddu said.

”While parents often take responsibility for their children’s care, there is a need to make sure the same information and level of care is provided once the child grows up and takes responsibility for their own health.”